Back to Earth
Haven't had much good news since arriving home, one of my meso mates isn't getting anywhere yet with treatments for the return of his meso. It seems Dr Abtin can't help as there are too many patches, guess it would be extremely expensive and dangerous trying to freeze the entire area, and I feel quite bad about it as I thought cryo would keep on top of such a return.
After having such a wonderful week of hardly any pain the first morning back in our own bed brought on aches, so hubby swapped our beds around and we have moved the tempo one out and brought back in our soft one. I must admit it is much more gentler on the bones but still have pain. The heart\throat indigestion feeling is much worse here too. Have started to wonder if it is indigestion really as am drinking glasses of milk before bedtime and it doesn't seem to help.
On a bright note, we had a wonderful time in Dubai and it was great meeting up with Benet and Jeff, this is Benet and myself after a rather filling meal at Junsi.
Since coming back I haven't had much time to myself as I have been busy at work. On Wednesday I didn't feel that good and I had visions of the last time we were on holiday and ending up in hospital for the night but it passed. So I stayed home and worked in the new cosy office, only to get started and we had a power cut from 11am till 8.30. Our neighbour came to our rescue and fed us with warm soup and a casserole (we are all electric now, not even a gas ring to help). So not much done but it gave me a chance to wind down.
The thought of the long drawn out winter ahead is making me feel low. Hubby said lets buy the Euro lottery tickets and if we won we could buy a private jet and take you off every weekend to the sun .... what a wonderful dream but in my life nothing has ever come easy so I doubt we would ever win big, we did win £6.80 on Friday's (a far cry from enough to buy a private jet that can take you when you want infact I don't think it would pay for a return ticket to Darlington).
I hear the Carer's day went really well and many people were unable to get tickets, these events are good for getting out what is going on, yet it still seems not much is being done in the way of treatments for meso. Which reminds me I still haven't had my scan results from August or a copy to send out. I can only hope and pray it is fine.
When you feel rough you do imagine the worst, yet meso can be growing and you feel no different. A point Hilary brought up the other day, how come it can be so slow growing then suddenly change into a rapid aggressive cancer?
I am being distracted as I have put some bird seed on the window sill and as I am sitting here writing I have 3 sparrows, one blue tit and a green finch all nibbling at the seed, two sparrows are fighting as one won't let the others in!
Think I had better go and fill up the bird feeders to save bloodshed on the windowsill.
Keep safe and well
Jan
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